2 posts in 1 day??!!

Yes yes yes :)

Doctors

Hi guys! 

So today I had a doctors appointment with a doctor for disability. I received a letter saying they wanted more information about my back/spinal issues. 

Well it was a longgggg day. My appointment was at 11:40am and of course because I'm always early I was there at 11. Good thing because I couldn't find the place at first. Anyway. 

Had to wait over 2 hours! Then they took me back for X-rays of my lower back and my knee I had surgery on. Wasn't sure why. Specially since my big spine problem is in my neck and upper back. The tech wasn't sure but he said it was probably that they had all the other info and wanted this as well. I never had my lower back checked.

Laying down for the X-ray he had to straighten me out to line me up evenly and let me tell you, I am so crooked. OMG. Worse then I thought. I guess since I can't lay straight ( I never realized that) I never knew. I felt so out of place and crooked once he moved me. I could feel how uneven things felt. My one leg is longer then the other. Same with my arms. I felt like I would fall off the table. Yet I was completely straight. So weird and really uncomfortable. 

I had to go wait again after. Finally in to see a dr. She was very nice. Everyone was actually. She just asked me how everything started. And how I got to this point. Then I explained how I feel and my symptoms. Then she did some tests. Had me walk back and forth. Stand on my heels and walk. Which I can't do. My feet immediately fall to the floor as if someone pushes on my toes. Then she had me sit and poked me with a paper clip. Didn't feel it really. Then we discussed what she found as she wrote her notes. She doesn't know what happens next. So I don't either. I hope to hear soon though and hopefully some good news. I could really use this. 

Anyway all that and I finally got home around 4! Ugh so long. 

And as I just stood up to go get something I see my back is killing me. Probably from the tech moving me all over. Oh well. I don't have anything else this week. 

Oh on another note it has been 4 weeks eating better following weight watchers points and I am down.......7.6 pounds!! Woo hoo haha. I feel like that is really good. I know a lot of this is from all the medication and that may be way it is coming off easy. I do hope it keeps it up though. I'm starting to see a difference. And Marqui told me yesterday he does as well :) :) 

That's all for now. I really need to update more often. It is hard though when I am home now all the time and don't have anything new going on. I wanted this to be mostly about my health but maybe I'll talk about other things. 

Never ending

It's be a while again. Oops. 

So last week on Monday I had to go to an appointment with my neuro, my original dr who found my spinal problem and referred me to Columbia University. I've applied for disability but it had been too long since I've seen him and I had to go. No big deal I thought. I've had a few things I really wanted to see him about anyway but was putting it off since I can't do any surgery to correct the problem. 

The things that have been going on are not really all new. My back still hurts my knees are still not they way they should be, walking down stairs still feels so strange and awkward. But the new things, my legs going numb when raised ( if I put my leg up to shave in the shower) or when I sit in the car has become worse, and my arms constantly go numb and tingly. I will wake up during the night with both of them 'asleep'. I usually just have to shake it off or change positions but it will happen through out the day as well and obviously isn't right. 

Well I first explained everything, going to Columbia, my platelets, cirrhosis, my surgeries and being unable to have anymore surgeries. 

He did some tests, had me squeeze his hands, lift my legs as he pushed them down, I did ok I guess. Checked my reflexes, very little in my right leg. Absolutely none in my left. He told me the things I'm experiencing are to be expected as progression happens but that it usually is slow. He also confirmed there is nothing I can do besides surgery, so there is nothing I can do. He then told me he wants me on disability, I said how I already applied and he told me he would send my records in.  He then asked about kids and if I planned on that because that's not a great idea/ not safe with my spine and that I need to talk to my gyno about it. Also that sooner is better. Not a conversation I'm looking forward too. I'm really hoping she has a different view. I don't even know when I will really look into that. All that I'll probably be keeping private and not go into any more discussion over until I really come to the time I need to figure it all out and talk to people about it. 

Overall I was glad he supported the disability decision. It isn't necessarily a good feeling though, I'm pretty sure no one wants to be on disability. 

Everything else has been ok. Nothing too eventful. The weather is getting nice which is good. 

Oh I have my interview with disability next Monday. Maybe next update I'll have some good news.