.: I wish I was better at thinking of post titles..

Tuesday, October 21, 2014

I wish I was better at thinking of post titles..

So I'm at work and I'm by myself ... Well not really. The 2 year old is asleep, the oldest not home from school yet and the 5 year old he got to go to the school with Jesisca, the other nanny because he is going to a friends house for a play date and they are meeting at the school. So I had some time.

This past weekend was pretty good. Saturday I went to my geandparents house and my cousin came for a visit. He is a marine and we don't get to see him often. Sunday was our friend Felix's 18th birthday. Crazy. I met him when he was 8! We went to his house for a party. Which basically meant I spent time with his older brother cooking in the kitchen. Haha. That's how it always is. If there is a party his brother cooks and I seem to join him and his girlfriend in the kitchen. It was fun. That was probably the most eventful weekend I've had in a long time. I usually spend most of my time in bed. I did go home and pass out by 8. But overall despite this horrible migraine I've had for weeks now, I felt pretty good. I have noticed some TMI things that make me think there is a chance of a lower platelet count. Of course my dr is on vacation this week ( how dare he! ;) ) and I won't have my normal Thursday appointment! Woah. I'm not ready for that. At. All. Nope. Really not. Every week I dread Thursdays ( for the injection, not my dr I love him) and now that I can't go because they are closed I am so worried. I keep thinking my count will drop so low, or that the week break will make me react different the following week during the injection. I hope I'm just paranoid, which is a lovely side effect from all these drugs btw.

It is a great thing for my veins though. They need a serious break. Seriously they hate me. I know it. Hopefully maybe they won't collapse 8 thousand times before I can start the injection next week.

So I wrote this crazy long letter to my friend Jamila. She was an au pair for a family I babysit for, for a year. We became super close. Were family. Sisters. Anyway she is from Germany and went back two days after my first appointment with my hematologist back in August. I'm pretty much going nuts without her. But we talk everyday which helps. Being sick though and going through all this I would love to just take a break from it all and go out with my best friend :(. Hopefully once I'm somewhat better I can get over there to visit. Anyway. I wrote her an email all about ITP because well I'm freaking her out. So I wrote all about it and all the meds I'm on. I'll probably put all that info on here this week. It was helpful even to myself to write it all out. Makes it not as scary, kinda.