Pretty much :( but still it sucks a lot today. It is Thursday so of course dr day. I tried to be as hopeful as I could today for my appointment, besides Marqui was coming with me and that's very unusual so I figured he might be good luck or something.
Well started out good- only 3 attempts to get a vein. Last night I told him we should take bets. I said 12 tries, he said 1. I'm glad it was closer to his guess.
But...platelet count... Was 83,000 2 weeks ago at my 3rd rituxan treatment and today........... 55,000
55,000!
Fifty five thousand!!!!
55k!!!
Ok you get the picture. Seriously. Why?! WRONG DIRECTION!
Yea it is still 'safe' but when I need a procedure done and probably back surgery this is NOT good at all.
As well as the fact that my mouth randomly bleeds, I have some bruises and red blood dots all over ( I know it has a name, rituxan fog going on over here)
Ugh.
Not good. I don't know why my body feels it needs to kill itself but it does. And it's putting up a serious fight.
So I go back Monday now for a count check. If it is low still I will be switching to IVIG. But in shot form , I think? If it is going up we will continue rituxan.
Be up. If it doesn't work and the shot doesn't work I will be needing a splenectomy and I really don't want that.
:( seriously bummed out. Thank goodness for Marqui being there. I almost lost it completely when I heard the count today.
I'll try to stay hopeful :/
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